Eligibility for inclusion

Men are eligible to be included on the PCR if they have had a notification forwarded to the Victorian Cancer Registry.

Most cases are diagnosed by a biopsy; even in biopsy cases reported as "suspicious" that are later deemed clear, the patient is placed on the PCR and contacted at 12 and 24 months post diagnosis. Occasionally notifications are made through results from scans or from the coroners’ report.  

 

Information collected

By requirement of the Cancer Act, 1958, all Victorian Hospitals, Pathology Services, and Prescribed Registers are required to report cancer diagnosis to the Victorian Cancer Registry. 

Information sent to the Victorian Cancer Registry is also retained by hospitals. Each participating hospital sends an Patient Information and Consent Form, and letter of invitation, to men who have met criteria for prostate cancer notification, inviting participation in the PCR.

For men who choose to participate, PCR collects data including age, demographics, diagnosis, treatment, from the hospital; and the response to a quality of life questionnaire at 12 and 24 months post diagnosis, from a follow-up phone call to the participant.


 

Consent

Men can choose to opt out of the PCR without incurring any out-of-pocket expenses.  

Provided men do not opt out, their details are entered into the PCR, which is housed within the School of Public Health and Preventive Medicine, Monash University.  

By not opting out of the PCR, men have provided consent for information on their positive biopsy to be made available to the PCR and for further clinical information to be collected.  

Consent is further obtained from men during a telephone interview 12 and 24 months after diagnosis. This interview serves to confirm treatment details and to administer a quality of life questionnaire. 

 

Figure 1: the recruitment process.




Data for the PCR is sourced  from the patient's medical record, the Victorian Cancer Registry, and the patient. Data collected from each contributor is outlined in Figure 2.